A comprehensive Fabry-related pain questionnaire for adult patients
作者: Nurcan ÜçeylerBarbara MaggPhillip ThomasSilke WiedmannPeter HeuschmannClaudia Sommer
作者单位: 1Department of Neurology, University of Würzburg, Würzburg, Germany
2Würzburg Fabry Center for Interdisciplinary Therapy (FAZIT), University of Würzburg, Würzburg, Germany
3Institute of Clinical Epidemiology and Biometry, University of Würzburg, Würzburg, Germany
4Comprehensive Heart Failure Center, University of Würzburg, Würzburg, Germany
5Clinical Trial Center Würzburg, University Hospital Würzburg, Würzburg, Germany
刊名: Pain, 2014, Vol.155 (11), pp.2301-2305
来源数据库: Elsevier Journal
DOI: 10.1016/j.pain.2014.08.024
关键词: Evoked painFabry diseaseFabry Pain QuestionnaireNeuropathic painPain attacksPain crises
英文摘要: Abstract(#br)Pain may be the earliest symptom in Fabry disease and presents with a distinct phenotype including triggerable pain attacks, evoked pain, pain crises, and chronic pain. Current pain questionnaires do not reflect the special phenotype of Fabry disease–associated pain, which hampers its systematic evaluation as the basis of correct diagnosis and effective treatment. A questionnaire specifically designed to assess Fabry disease–associated pain is thus urgently needed. At the Würzburg Fabry Center for Interdisciplinary Therapy (FAZIT), Germany, we developed and validated the first face-to-face Fabry Pain Questionnaire (FPQ) for adult patients. The initial version of the FPQ was tested in a pilot study with 20 consecutive Fabry disease patients. The performance of the revised FPQ...
全文获取路径: Elsevier  (合作)
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影响因子:5.644 (2012)

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