Learning from registries in pulmonary arterial hypertension: pitfalls and recommendations
作者: Katleen SwinnenRozenn QuarckLaurent GodinasCatharina BelgeMarion Delcroix
作者单位: 1Respiratory Division, Dept of Chronic Diseases, Metabolism & Ageing, KU Leuven – University of Leuven, Leuven, Belgium
2Dept of Respiratory Diseases, University Hospitals Leuven, Leuven, Belgium
刊名: European Respiratory Review, 2019, Vol.28 (154)
来源数据库: European Respiratory Society
DOI: 10.1183/16000617.0050-2019
原始语种摘要: Pulmonary arterial hypertension is a rare and incurable chronic disease characterised by a progressive increase in pulmonary vascular resistance and right heart failure. Patient registries collecting observational data can be of great value in the understanding of clinical problems. While clinical trials provide data in selected patient populations, registries better depict real-life practice. This review aims to reflect the input of patient registries in the general knowledge of the disease. Advances in epidemiology of the different subgroups, including data on incidence and/or prevalence, increasing age at presentation and stagnating diagnostic delay are reported. The importance of haemodynamic definition criteria and cardiac comorbidities are underscored. The review also shows the...
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关键词翻译
关键词翻译
  • hypertension 高血压
  • arterial 动脉的
  • registry 注册
  • upcoming 即将到来的
  • pulmonary 肺的
  • prevalence 传播
  • incurable 不治的
  • stratification 层理
  • incidence 入射
  • methodological 方法论的