Self-administered version of the Fabry-associated pain questionnaire for adult patients
作者: Barbara MaggChristoph RieglerSilke WiedmannPeter HeuschmannClaudia SommerNurcan Üçeyler
作者单位: 1University of Würzburg
2University Hospital Würzburg
刊名: Orphanet Journal of Rare Diseases, 2015, Vol.10 (1)
来源数据库: Springer Nature Journal
DOI: 10.1186/s13023-015-0325-7
关键词: Fabry diseaseFabry-associated painPain questionnaire
英文摘要: Abstract(#br) Background(#br)Fabry-associated pain may be the first symptom of Fabry disease (FD) and presents with a unique phenotype including mostly acral burning triggerable pain attacks, evoked pain, pain crises, and permanent pain. We recently developed and validated the first Fabry Pain Questionnaire (FPQ) for adult patients. Here we report on the validation of the self-administered version of the FPQ that no longer requires a face-to-face interview but can be filled in by the patients themselves allowing more flexible data collection.(#br) Methods(#br)At our Würzburg Fabry Center for Interdisciplinary Treatment, Germany, we have developed the self-administered version of the FPQ by adapting the questionnaire to a self-report version. To do this, consecutive Fabry patients with...
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影响因子:4.315 (2012)

  • questionnaire 甸表
  • adult 成体
  • associated 相关的
  • version 变种