Healthcare professionals’ and parents’ experiences of the confirmatory testing period: a qualitative study of the UK expanded newborn screening pilot
作者: Louise MoodyLou AtkinsonIsher KehalJames R. Bonham
作者单位: 1Coventry University
2Western Bank
刊名: BMC Pediatrics, 2017, Vol.17 (1)
来源数据库: Springer Nature Journal
DOI: 10.1186/s12887-017-0873-1
关键词: Expanded newborn screeningConfirmatory testingParents experiencesHCPs experiencesCommunication of screening results
英文摘要: With further expansion of the number of conditions for which newborn screening can be undertaken, it is timely to consider the impact of positive screening results and the confirmatory testing period on the families involved. This study was undertaken as part of a larger programme of work to evaluate the Expanded Newborn Screening (ENBS) programme in the United Kingdom (UK). It was aimed to determine the views and experiences of healthcare professionals (HCPs) and parents on communication and interaction during the period of confirmatory testing following a positive screening result.
原始语种摘要: With further expansion of the number of conditions for which newborn screening can be undertaken, it is timely to consider the impact of positive screening results and the confirmatory testing period on the families involved. This study was undertaken as part of a larger programme of work to evaluate the Expanded Newborn Screening (ENBS) programme in the United Kingdom (UK). It was aimed to determine the views and experiences of healthcare professionals (HCPs) and parents on communication and interaction during the period of confirmatory testing following a positive screening result.
全文获取路径: Springer Nature  (合作)
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来源刊物:
影响因子:1.982 (2012)

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关键词翻译
关键词翻译
  • confirmatory 证实的
  • newborn 新生儿
  • screening 筛分
  • testing 测试
  • qualitative 质的
  • consider 仔细考虑
  • timely 及时的
  • programme 程序
  • following 追踪
  • expanded 加宽